Scale of Alopecia Areata Distress (SAAD-41): Initial Validation Part 2—Scoring, Preliminary Reference Values and Validity

July 2026 in “ JEADV Clinical Practice ”

Kristina Gorbatenko-roth, Mattea Trinitapoli, Sarah Wood, Irmina Wallander, Jaime Nugent, Maria Hordinsky

Alopecia Areata SAAD‐41 Dermatology Life Quality Index Brief Resilient Coping Scale Acceptance of Chronic Health Conditions Scale

Studysummary This study found that the SAAD-41 is a validated tool for assessing psychosocial outcomes in individuals with alopecia areata, showing strong correlations with established measures of quality of life and coping.

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research Comparison of Dermatology Life Quality Index Scores in Adults and Adolescents With Alopecia Areata

2 citations , April 2025 in “Dermatology and Therapy”

This study found that although both adults and adolescents with alopecia areata experience a significant quality of life impact from ≥50% scalp hair loss, the impact is greater for adolescents, as indicated by their higher Dermatology Life Quality Index scores.

research Alopecia Areata–Specific Patient-Reported Outcome Measures

2 citations , March 2025 in “JAMA Dermatology”

This review evaluates the quality of alopecia areata-specific patient-reported outcome measures and suggests that more high-quality validation studies are needed to enhance their reliability and validity.

research Psychosocial and Mental Impact of Alopecia Areata: Analysis of the Danish Skin Cohort

17 citations , June 2024 in “Journal of the European Academy of Dermatology and Venereology”

This study suggests that using an appropriate tool for measuring quality of life is vital, particularly as factors like severity, female sex, and eyebrow involvement may increase the psychosocial burden of alopecia areata.

research Health-Related Quality of Life of Adult and Adolescent Patients Living with Alopecia Areata in Australia

5 citations , May 2024 in “Australasian Journal of Dermatology”

This study found that alopecia areata significantly impacts both emotional and psychosocial well-being, leading to impaired productivity in adults and adolescents, especially those experiencing more extensive hair loss.

research Self-Stigmatization and Alopecia Areata: Exploring the Role of Social Support, Helplessness, and Illness Acceptance

1 citations , September 2023 in “Journal of the American Academy of Dermatology”

This study found that self-stigma is common among alopecia areata patients, with 85% experiencing it to some degree, and that factors like increased social support and illness acceptance correlate with lower stigmatization levels, while helplessness correlates with higher levels.

research The Invisible Impact Of A Visible Disease: Psychosocial Impact Of Alopecia Areata

40 citations , June 2023 in “Dermatology and Therapy”

This study found that the emotional impact of alopecia areata is significant, but it may not correlate directly with the extent of hair loss since some individuals adapt to the condition.

research Beyond Health-Related Quality of Life: Initial Psychometric Validation of a New Scale for Addressing the Gap in Assessing the Full Range of Alopecia Areata Psychosocial Burden

8 citations , June 2023 in “British Journal of Dermatology”

This study developed and initially validated the Scale of Alopecia Areata Distress (SAAD), a 41-item tool designed to measure psychosocial distress among US adults with alopecia areata.

research The Burden of Alopecia Areata: A Scoping Review Focusing on Quality of Life, Mental Health, and Work Productivity

10 citations , January 2023 in “Journal of the European Academy of Dermatology and Venereology”

This review highlights the significant negative impact of alopecia areata on quality of life, mental health, and work, calling for individualized approaches and effective treatments to mitigate these effects.

research The Association of Alopecia Areata-Related Emotional Symptoms with Work Productivity and Daily Activity Among Patients with Alopecia Areata

29 citations , December 2022 in “Dermatology and Therapy”

This study reported that patients with alopecia areata experienced significant increases in work productivity loss and activity impairment due to worsening emotional symptoms, highlighting a need for better treatments.

The Relationship Between Patient-Reported Severity of Hair Loss and Health-Related Quality of Life and Treatment Patterns Among Patients with Alopecia Areata

research The Relationship Between Patient-Reported Severity of Hair Loss and Health-Related Quality of Life and Treatment Patterns Among Patients with Alopecia Areata

4 citations , March 2022 in “Dermatology and Therapy”

This study found that alopecia areata severity significantly influences the health-related quality of life impacts and treatment patterns among affected individuals.

research Validation of the Alopecia Areata Patient Priority Outcomes Questionnaire in Adults and Adolescents with Alopecia Areata

22 citations , November 2021 in “Dermatology and Therapy”

This study found that the Alopecia Areata Patient Priority Outcomes questionnaire is a reliable and valid tool for measuring the severity and impact of hair loss in individuals with alopecia areata.

research Association of Resilience and Perceived Stress in Patients with Alopecia Areata: A Cross-Sectional Study

2 citations , July 2021 in “Journal of The American Academy of Dermatology”

People with alopecia who are more resilient tend to feel less stressed.

research Measuring Patient Quality of Life Following Treatment for Alopecia

8 citations , July 2021 in “Patient Preference and Adherence”

This review discusses how alopecia impacts patients' quality of life and evaluates the use and limitations of HRQoL questionnaires without reporting new clinical results.

Quality of Life Measurement in Alopecia Areata: Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes

research Quality of Life Measurement in Alopecia Areata: Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes

24 citations , June 2021 in “Journal of the European Academy of Dermatology and Venereology”

This review highlights current knowledge about quality of life assessment in alopecia areata, noting limited use of existing instruments and a need for further validation.

research Patient Perspectives of the Social, Emotional and Functional Impact of Alopecia Areata: A Systematic Literature Review

67 citations , March 2021 in “Dermatology and Therapy”

This review discusses the substantial impact of alopecia areata on patients' health-related quality of life, highlighting issues such as personality changes, emotional and social difficulties, and a common occurrence of alexithymia, and emphasizes the need for more specific assessment tools.

research Development of the Alopecia Areata Patient Priority Outcomes Instrument: A Qualitative Study

11 citations , March 2021 in “Dermatology and therapy”

This study developed the Alopecia Areata Patient Priority Outcome (AAPPO), a new tool designed to measure and capture the symptoms and impacts of alopecia areata that matter most to patients.

‘You Lose Your Hair, What’s the Big Deal?’ I Was So Embarrassed, I Was So Self-Conscious, I Was So Depressed: A Qualitative Interview Study to Understand the Psychosocial Burden of Alopecia Areata

research ‘You Lose Your Hair, What’s the Big Deal?’ I Was So Embarrassed, I Was So Self-Conscious, I Was So Depressed: A Qualitative Interview Study to Understand the Psychosocial Burden of Alopecia Areata

30 citations , September 2020 in “Journal of Patient-Reported Outcomes”

This study found that alopecia areata significantly impacts emotional and psychological well-being, relationships, and lifestyles, highlighting the need for increased awareness and effective treatments.

research Dimensionality and Psychometric Analysis of DLQI in a Brazilian Population

22 citations , August 2020 in “Health and Quality of Life Outcomes”

In this study, the DLQI demonstrated reliable psychometric properties and a unidimensional structure for assessing health-related quality of life in Brazilian patients with various skin conditions.

HRQoL in Hair Loss-Affected Patients with Alopecia Areata, Androgenetic Alopecia, and Telogen Effluvium: The Role of Personality Traits and Psychosocial Anxiety

research HRQoL in Hair Loss-Affected Patients with Alopecia Areata, Androgenetic Alopecia, and Telogen Effluvium: The Role of Personality Traits and Psychosocial Anxiety

29 citations , November 2018 in “Journal of The European Academy of Dermatology and Venereology”

This study found that anxiety-related traits significantly predict the impact of hair loss on quality of life across different alopecia types, with variations observed based on gender.

Factors Affecting the Psychosocial Distress of Patients with Alopecia Areata: A Nationwide Study in Korea