Beyond Health-Related Quality of Life: Initial Psychometric Validation of a New Scale for Addressing the Gap in Assessing the Full Range of Alopecia Areata Psychosocial Burden

    June 2023 in “ British Journal of Dermatology ”
    Kristina G. Gorbatenko-Roth, Sarah Wood, M. H. Johnson … Maria Hordinsky
    Studysummary This study developed and initially validated the Scale of Alopecia Areata Distress (SAAD), a 41-item tool designed to measure psychosocial distress among US adults with alopecia areata.
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    Research cited in this study 11

    1. Validation of the Alopecia Areata Patient Priority Outcomes Questionnaire in Adults and Adolescents with Alopecia Areata Dermatology and Therapy · 2021
    2. Measuring Patient Quality of Life Following Treatment for Alopecia Patient Preference and Adherence · 2021
    3. Quality of Life Measurement in Alopecia Areata: Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes Journal of the European Academy of Dermatology and Venereology · 2021
    4. Patient Perspectives of the Social, Emotional and Functional Impact of Alopecia Areata: A Systematic Literature Review Dermatology and Therapy · 2021
    5. Development of the Alopecia Areata Patient Priority Outcomes Instrument: A Qualitative Study Dermatology and therapy · 2021
    6. ‘You Lose Your Hair, What’s the Big Deal?’ I Was So Embarrassed, I Was So Self-Conscious, I Was So Depressed: A Qualitative Interview Study to Understand the Psychosocial Burden of Alopecia Areata Journal of Patient-Reported Outcomes · 2020
    7. HRQoL in Hair Loss-Affected Patients with Alopecia Areata, Androgenetic Alopecia, and Telogen Effluvium: The Role of Personality Traits and Psychosocial Anxiety Journal of The European Academy of Dermatology and Venereology · 2018
    8. Factors Affecting the Psychosocial Distress of Patients with Alopecia Areata: A Nationwide Study in Korea Journal of Investigative Dermatology · 2018
    9. Health-Related Quality of Life Among Patients With Alopecia Areata: A Systematic Review Journal of The American Academy of Dermatology · 2016
    10. Alopecia Areata and Health-Related Quality of Life: A Systematic Review and Meta-Analysis British Journal of Dermatology · 2016
    11. Reported Experiences of Persons with Alopecia Areata Journal of loss & trauma · 2004