Beyond Health-Related Quality of Life: Initial Psychometric Validation of a New Scale for Addressing the Gap in Assessing the Full Range of Alopecia Areata Psychosocial Burden
June 2023
in “
British Journal of Dermatology
”
Research cited in this study
11 / 11 resultsresearch Validation of the Alopecia Areata Patient Priority Outcomes (AAPPO) Questionnaire in Adults and Adolescents with Alopecia Areata
The study validated the Alopecia Areata Patient Priority Outcomes (AAPPO) questionnaire as a reliable and valid tool for assessing hair loss severity and its impact on individuals with alopecia areata (AA). This disease-specific measure was tested in both adults and adolescents, providing a standardized method to evaluate the condition's effects. The validation of the AAPPO questionnaire helped in understanding the patient-reported outcomes, which are crucial for both clinical assessments and therapeutic interventions in AA.
research Measuring Patient Quality of Life Following Treatment for Alopecia
Alopecia treatments improve life quality but side effects can lessen this benefit; better use of quality of life measures is needed.
research Quality of Life Measurement in Alopecia Areata: Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes
Use specific tools to measure quality of life in alopecia areata patients and improve future treatments.
research Patient Perspectives of the Social, Emotional and Functional Impact of Alopecia Areata: A Systematic Literature Review
research Development of the Alopecia Areata Patient Priority Outcomes Instrument: A Qualitative Study
Researchers created a new tool to measure the effects of alopecia areata from the patient's view, focusing on hair loss, daily life, and emotional health.
research ‘You Lose Your Hair, What’s the Big Deal?’ I Was So Embarrassed, I Was So Self-Conscious, I Was So Depressed: A Qualitative Interview Study to Understand the Psychosocial Burden of Alopecia Areata
Alopecia Areata (AA) causes significant emotional distress, including feelings of embarrassment, depression, and anxiety, and impacts social interactions and daily activities.
research HRQoL in Hair Loss-Affected Patients with Alopecia Areata, Androgenetic Alopecia, and Telogen Effluvium: The Role of Personality Traits and Psychosocial Anxiety
Personality traits and anxiety affect hair loss patients' quality of life.
research Factors Affecting the Psychosocial Distress of Patients with Alopecia Areata: A Nationwide Study in Korea
Many patients with Alopecia Areata in Korea experience anxiety, depression, and reduced quality of life, which are often unrelated to the severity of hair loss.
research Health-Related Quality of Life Among Patients With Alopecia Areata: A Systematic Review
People with alopecia areata, a skin disease, generally have a poor quality of life, especially if more of their scalp is affected.
research Alopecia Areata and Health-Related Quality of Life: A Systematic Review and Meta-Analysis
Alopecia areata significantly lowers the quality of life, especially in emotional and mental health aspects.
research Reported Experiences of Persons with Alopecia Areata
People with alopecia areata often experience negative personal, social, and medical impacts, and need psychological support.