Quality of Life Measurement in Alopecia Areata: Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes

    June 2021 in “ Journal of the European Academy of Dermatology and Venereology ”
    Pavel V. Chernyshov, Lucía Tomás‐Aragonés, A.Y. Finlay … Jacek C. Szepietowski
    Studysummary This review highlights current knowledge about quality of life assessment in alopecia areata, noting limited use of existing instruments and a need for further validation.
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    Research cited in this study 24

    1. Low-Dose IL-2 for Treating Moderate to Severe Alopecia Areata: A 52-Week Multicenter Prospective Placebo-Controlled Study Assessing Its Impact on T Regulatory Cell and NK Cell Populations ˜The œjournal of investigative dermatology/Journal of investigative dermatology · 2020
    2. ‘You Lose Your Hair, What’s the Big Deal?’ I Was So Embarrassed, I Was So Self-Conscious, I Was So Depressed: A Qualitative Interview Study to Understand the Psychosocial Burden of Alopecia Areata Journal of Patient-Reported Outcomes · 2020
    3. JAK Inhibitors for the Treatment of Alopecia Areata PubMed · 2020
    4. JAK Inhibition in the Treatment of Alopecia Areata: A Promising New Dawn? Expert review of clinical pharmacology · 2019
    5. Association of Autoimmune Regulator Gene Rs2075876 Variant, but Not Gene Expression, with Alopecia Areata in Males: A Case-Control Study Immunological investigations · 2019
    6. The Psychosocial Burden of Alopecia Areata and Androgenetic Alopecia: A Cross-Sectional Multicentre Study Among Dermatological Outpatients in 13 European Countries Journal of the European Academy of Dermatology and Venereology · 2019
    7. Cyclosporine for Moderate-to-Severe Alopecia Areata: A Double-Blind, Randomized, Placebo-Controlled Clinical Trial of Efficacy and Safety Journal of the American Academy of Dermatology · 2019
    8. Janus Kinase Inhibitors for the Treatment of Severe Alopecia Areata: An Open-Label Comparative Study Dermatology · 2018
    9. HRQoL in Hair Loss-Affected Patients with Alopecia Areata, Androgenetic Alopecia, and Telogen Effluvium: The Role of Personality Traits and Psychosocial Anxiety Journal of The European Academy of Dermatology and Venereology · 2018
    10. Factors Affecting the Psychosocial Distress of Patients with Alopecia Areata: A Nationwide Study in Korea Journal of Investigative Dermatology · 2018
    11. Comparison of Quality of Life in Patients with Androgenetic Alopecia and Alopecia Areata Anais Brasileiros De Dermatologia · 2018
    12. Quality of Life with Alopecia Areata Versus Androgenetic Alopecia Assessed Using Hair Specific Skindex-29 Annals of Dermatology · 2018
    13. Adaptive Regulatory Mechanisms of Alopecia Areata PubMed · 2017
    14. Validation of an Egyptian Arabic Version of Skindex-16 and Quality of Life Measurement in Egyptian Patients with Skin Disease International Journal of Behavioral Medicine · 2017
    15. Quality of Life Assessment in Patients with Alopecia Areata and Androgenetic Alopecia in the People's Republic of China Patient Preference and Adherence · 2017
    16. Illness Perception in Patients with Androgenetic Alopecia and Alopecia Areata in China Journal of Psychosomatic Research · 2016
    17. Alopecia Areata and Health-Related Quality of Life: A Systematic Review and Meta-Analysis British Journal of Dermatology · 2016
    18. Quality of Life in Patients with Alopecia Areata: A Hospital-Based Cross-Sectional Study Journal of the European Academy of Dermatology and Venereology · 2015
    19. Epidemiology and Burden of Alopecia Areata: A Systematic Review Clinical, Cosmetic and Investigational Dermatology · 2015
    20. Quality of Life in Alopecia Areata: A Sample of Tunisian Patients Dermatology Research and Practice · 2013
    21. Psychosocial Impact of Wigs or Hairpieces on Perceived Quality of Life in Female Patients with Alopecia Areata The Journal of Dermatology · 2012
    22. Quality of Life Assessment in Male Patients with Androgenetic Alopecia: Results of a Prospective, Multicenter Study Annals of Dermatology · 2012
    23. Clinical Severity Does Not Reliably Predict Quality of Life in Women With Alopecia Areata, Telogen Effluvium, or Androgenic Alopecia Journal of The American Academy of Dermatology · 2011
    24. Quality of Life in Alopecia Areata: A Study of 60 Cases Journal of Investigative Dermatology · 2010

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