Alopecia Areata–Specific Patient-Reported Outcome Measures

    March 2025 in “ JAMA Dermatology ”
    Emadodin Darchini‐Maragheh, Anthony Moussa, Nicole Kah Mun Yoong … Rodney Sinclair
    Studysummary This review evaluates the quality of alopecia areata-specific patient-reported outcome measures and suggests that more high-quality validation studies are needed to enhance their reliability and validity.
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    Research cited in this study 6

    1. Beyond Health-Related Quality of Life: Initial Psychometric Validation of a New Scale for Addressing the Gap in Assessing the Full Range of Alopecia Areata Psychosocial Burden British Journal of Dermatology · 2023
    2. Validation of the Alopecia Areata Patient Priority Outcomes Questionnaire in Adults and Adolescents with Alopecia Areata Dermatology and Therapy · 2021
    3. Development of the Alopecia Areata Patient Priority Outcomes Instrument: A Qualitative Study Dermatology and therapy · 2021
    4. Dermatologist and Patient Perceptions of Treatment Success in Alopecia Areata and Evaluation of Clinical Outcome Assessments in Japan Dermatology and therapy · 2021
    5. ‘You Lose Your Hair, What’s the Big Deal?’ I Was So Embarrassed, I Was So Self-Conscious, I Was So Depressed: A Qualitative Interview Study to Understand the Psychosocial Burden of Alopecia Areata Journal of Patient-Reported Outcomes · 2020
    6. Development of Clinician-Reported Outcome and Patient-Reported Outcome Measures for Eyebrow, Eyelash, and Nail Assessment in Alopecia Areata American Journal of Clinical Dermatology · 2020

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