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TikTok videos show that people with Lupus often discuss symptoms and their significant impact on mental health, face diagnostic delays, have mixed views on treatments, and feel isolated despite support.

A 61-year-old Filipino man had a skin condition that looked like another disease, making diagnosis difficult.

A woman with lupus had rare severe symptoms but improved with treatment.

A patient with a rare form of lupus improved after treatment for skin ulcers and hair loss on the face and scalp.

Non-scarring hair loss in lupus patients often responds well to treatment and doesn't lead to scarring.

Lupus patients on TikTok feel isolated, face medical gaslighting, and prefer non-drug treatments.

The COVID-19 vaccine is viewed more negatively and causes more side effects than the flu vaccine in Korean patients with lupus.

Lower GPX4 mRNA levels are linked to higher disease activity and symptoms in lupus patients.

Lupus can be a rare cause of high calcium levels in the blood.

Repeated biopsies are crucial for managing lupus panniculitis when initial treatments fail.

Lupus can cause a type of hair loss that doesn't scar, due to inflammation.

Lupus hepatitis can affect male SLE patients and is treatable with specific medications.

Hydroxychloroquine may help COVID-19 patients with lupus.

Lupus nephritis can cause severe kidney and blood vessel problems.

A TNFAIP3 gene mutation can cause unusual and varied symptoms of lupus and Sjogren's syndrome.

Patients with cutaneous lupus erythematosus have a severely impaired quality of life, especially emotionally.

Skin problems are very common in people with systemic lupus erythematosus and important for diagnosis.

Pregnancy can increase lupus activity, but careful planning and treatment can improve outcomes.

Dermoscopy helps diagnose and monitor treatment for hair loss from scarring conditions like discoid lupus and lichen planopilaris.

Belimumab reduces disease activity, steroid use, and flares in lupus patients.

Early diagnosis and treatment of discoid lupus erythematosus improve outcomes.

Pediatric systemic lupus erythematosus is a severe autoimmune disease in children requiring early diagnosis and comprehensive management.

The CLASI is a reliable tool for measuring the severity of cutaneous lupus erythematosus.

Most Korean systemic lupus erythematosus patients experienced hair loss, often as non-scarring diffuse hair loss, with non-scarring patch alopecia also common.

Damage to hair follicle stem cells causes permanent hair loss and scarring in cutaneous lupus erythematosus.

Catalytic antibodies are early indicators and active participants in the development of systemic lupus erythematosus.

Woman has discoid lupus, frontal fibrosing, and androgenetic alopecia.

Early scar classification in lupus can improve treatment and patient outcomes.

Systemic lupus erythematosus is a chronic disease causing inflammation and various symptoms, mainly in young women, treated with anti-inflammatory and immunosuppressive drugs.

A 5-year-old girl's scalp scarring and hair loss from lupus improved with specific medications.