Living With Lupus In Ireland: Results Of A Patient Survey

A survey conducted by Arthritis Ireland in late 2023, involving 57 respondents, revealed that lupus significantly impacts various aspects of life, including daily activities, family life, work, and mental health. Joint pain (88%) and extreme tiredness (86%) were the most common symptoms. Despite 93% being prescribed medication, 70% still experience flares at least every 3 months, and 45% report significant medication side-effects. The survey highlighted the importance of self-management, with 85% of respondents aware of its role. The findings underscore the substantial personal and financial costs of inadequate lupus treatment.