Patient-Reported Burden of Severe Alopecia Areata: First Results from the Multinational Alopecia Areata Unmet Need Survey

    Anthony Bewley, Ignasi Figueras‐Nart, Jainzhong Zhang, Mariana Guerreiro, Nicole Tietz, Sami Chtourou, Frédérick Durand, Ulrike Blume‐Peytavi
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    TLDR Severe alopecia areata greatly impacts quality of life, mental health, and daily activities.
    This study surveyed 747 adults from 11 countries with severe alopecia areata (AA) to understand its impact on their lives. The results showed that AA significantly affects quality of life, mental health, and daily activities, with 86.2% of participants reporting a severe impact on their quality of life. Common comorbidities included anxiety (26.1%), depression (18.1%), and sleep problems (28.1%). Women and those with longer disease duration reported more severe symptoms. Participants expressed a need for realistic treatment expectations, mental health support, and information on treatment options. The study highlights the importance of comprehensive management strategies addressing both physical and psychosocial aspects of AA.
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