International PCOS Guideline Clinical Research Priorities Roadmap: A Co-Designed Approach Aligned With End-User Priorities in a Neglected Women's Health Condition

    November 2024 in “ EClinicalMedicine ”
    Helena Teede, Matthew Gibson, Joop S.E. Laven, Anuja Dokras, Lisa Moran, T Piltonin, Michael Costello, Aya Mousa, Anju E. Joham, Chau Thien Tay, Wiebke Arlt, Ricardo Azziz, Adam Balen, Lisa Bedson, Lorna Berry, Jacky Boivin, Jacqueline Boyle, Leah Brennan, Wendy Brown, Tania Burgert, Maureen Busby, Carolyn Ee, Rhonda M. Garad, Cheryce Harrison, Roger Hart, Marie Misso, Rachel Morman, Angelica Lindén Hirschberg, Tuong Ho, Kathleen Hoeger, Sonia Jitpiriyaroj, Cailin Jordan, Richard S. Legro, Rong Li, Marla Lujan, Ronald C. Ma, Darren Mansfield, Kate Marsh, Edgar Mocanu, Robert J. Norman, Sharon Oberfield, Dawn Kimberly Hopkins, Malika Patel, Alexia Peña, Leanne Redman, Luk Rombauts, Daniela Romualdi, Duru Shah, Poli Mara Spritzer, Elisabet Stener-Victorin, Fahimeh Ramezani Tehrani, Shakila Thangaratinam, Mala Thondan, Eszter Vanky, Bassel H. Al Wattar, Chandrika Wijeyaratne, Selma Witchel, Dongzi Yang, Bulent O. Yildiz
    Studysummary This abstract does not report specific study results but describes the funding and collaboration involved in developing the International PCOS Guidelines by multiple health research organizations. Our plain-language summary of this paper — not a Tressless recommendation.
    The International PCOS guideline clinical research priority roadmap was developed through a collaborative process involving over 2,800 women, healthcare providers, and academic experts globally. It identifies over 150 research recommendations focused on improving diagnosis, understanding long-term metabolic implications, and addressing infertility in PCOS. Key themes include optimizing diagnosis accuracy, exploring effective lifestyle interventions, and enhancing fertility treatments. The roadmap emphasizes the need for high-quality, multisite studies that consider ethnic and age diversity, and it highlights the potential of precision medicine. It calls for increased research funding and the integration of large datasets to advance precision medicine, aiming to improve health outcomes for women with PCOS.
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