Frontal Fibrosing Alopecia Quality of Life Index: A Validated Disease-Specific Questionnaire Involving Women

January 2023 in “ Journal of Clinical Medicine ”

María Librada Porriño‐Bustamante, Trinidad Montero‐Vílchez, María Antonia Fernández‐Pugnaire, Salvador Arias‐Santiago

Frontal Fibrosing Alopecia quality of life Dermatology Life Quality Index

TLDR The FFA-QLI is a reliable tool for assessing quality of life in women with severe Frontal Fibrosing Alopecia.

The study developed and validated the Frontal Fibrosing Alopecia Quality of Life Index (FFA-QLI), a questionnaire specifically designed to assess the quality of life in women with Frontal Fibrosing Alopecia (FFA). Involving 101 women with FFA and 40 healthy controls, the FFA-QLI showed high reliability and validity, outperforming the Dermatology Life Quality Index (DLQI) in identifying severe cases of FFA, particularly in patients with long-lasting alopecia and eyebrow alopecia. The study highlighted the FFA-QLI's greater discriminative power in assessing quality of life impacts compared to traditional tools, although it was less effective in distinguishing patients with facial papules.

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