Development of the First Health-Related Quality of Life Questionnaires in Arabic for Women with Polycystic Ovary Syndrome: Creation and Reliability Analysis of PCOSQoL-47 and PCOSQoL-42

    April 2021 in “ Cureus ”
    Samih A Odhaib, Fatemeh Nasiri Amiri, Mahmood Thamer Altemimi, Husam Jihad Imran, Haider Ayad Alidrisi, Miaad J Mohammed, Abbas Ali Mansour
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    TLDR Two new reliable Arabic questionnaires for measuring quality of life in women with PCOS were created, one for married and one for unmarried women.
    The study developed two health-related quality of life questionnaires in Arabic for women with Polycystic Ovary Syndrome (PCOS), named PCOSQoL-47 for married women and PCOSQoL-42 for unmarried women. The questionnaires were created from 584 PubMed articles and tested for reliability on 368 women (195 married and 173 unmarried). The questionnaires, which cover domains like emotional and psychological health, menstrual irregularities, fertility, body image, hair and acne, and coping mechanisms, showed high reliability and internal consistency. The study also highlighted the inclusion of a special domain for hair disorders and acne, which were overlooked in previous questionnaires. The questionnaires are now ready for use and can be translated into any language, facilitating further studies in Arabic-speaking communities and others with similar norms regarding marriage and sexuality.
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