Development and Testing of a Decision Board to Help Clinicians Present Treatment Options to Lupus Nephritis Patients in Brazil

December 2008 in “ Arthritis Care & Research ”

Mirhelen Mendes de Abreu, Amiran Gafni, Marcos Bosi Ferraz

lupus nephritis hair loss iatrogenic cancer severe infection immunosuppressive drugs SLE

TLDR The decision board effectively helps lupus nephritis patients in Brazil choose treatments by clearly presenting options and side effects.

The study developed and tested a decision board (DB) to aid clinicians in presenting treatment options to lupus nephritis patients in Brazil, involving 172 participants. The DB included clinical information, treatment options, and potential side effects, allowing patients to select and justify their preferred treatment. Patients predominantly favored oral medication, with concerns about side effects like iatrogenic cancer (44.2%), hair loss (21.6%), and severe infection (19.1%). The DB demonstrated reliability (κ = 0.689) and construct validity, with treatment decisions influenced by side effects and immunosuppressive drugs. The DB was found to be a clear and effective tool for supporting shared decision-making in SLE treatment.

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