Living With The Wolf: A Personal Journey With Systemic Lupus Erythematosus

November 2006 in “ APLAR Journal of Rheumatology ”

Albert Lau, Po‐Hao Feng

systemic lupus erythematosus SLE hair loss lupus

TLDR The author found peace and acceptance living with lupus through support, understanding, and treatment.

The article "Living with the wolf" detailed the personal journey of an individual diagnosed with systemic lupus erythematosus (SLE) 15 years prior. The author described lupus as a complex disease with varied symptoms, including hair loss, that can range from mild to life-threatening. Despite the challenges, including multiple surgeries and ongoing treatments, the author emphasized the importance of understanding the disease, managing stress, and maintaining a positive outlook. Support from family, friends, medical professionals, and organizations like the Singapore Lupus Association played a crucial role in coping with the illness. The author expressed gratitude for the lessons learned and the strength gained through living with lupus, ultimately finding peace and purpose despite the ongoing challenges, including being on dialysis due to kidney failure.

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