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    Glossary Patient-Reported Outcome Measures

    tools for patients to report their health and treatment outcomes

    Patient-Reported Outcome Measures (PROMs) are tools used to gather information directly from patients about their health status, quality of life, and the effectiveness of treatments from their perspective. These measures are crucial in both clinical practice and research as they provide insights into how patients feel and function, which can help guide treatment decisions and improve healthcare outcomes.

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    1. Alopecia Areata–Specific Patient-Reported Outcome Measures JAMA Dermatology · 2025 · 2 citations
    2. Development and validation of a patient‐reported outcome measure for hair loss treatment: The HAIR‐Q Journal of Cosmetic Dermatology · 2024 · 2 citations
    3. An Evaluation of Generic and Disease‐Specific Patient‐Reported Outcome Measures to Assess the Impact of Percentage of Scalp Hair Loss on Health‐Related Quality of Life in a European Population JEADV Clinical Practice · 2025 · 1 citations
    4. P151 A multicentre real-world evaluation of ritlecitinib in severe alopecia areata: patient-reported outcome measures British Journal of Dermatology · 2026
    5. PSS21 GAP ANALYSIS FOR PATIENT-REPORTED OUTCOMES MEASURES FOR ALOPECIA Value in Health · 2011
    6. Development of Clinician-Reported Outcome (ClinRO) and Patient-Reported Outcome (PRO) Measures for Eyebrow, Eyelash and Nail Assessment in Alopecia Areata American Journal of Clinical Dermatology · 2020 · 56 citations
    7. Patient-Reported Hair Loss and Its Impacts as Measured by the Alopecia Areata Patient Priority Outcomes Instrument in Patients Treated with Ritlecitinib: The ALLEGRO Phase 2b/3 Randomized Clinical Trial American Journal of Clinical Dermatology · 2024 · 4 citations
    8. Choice of recall period for patient-reported outcome (PRO) measures: criteria for consideration Quality of Life Research · 2011 · 82 citations
    9. A qualitative phase I study protocol on developing patient-reported outcome measure for hair, scalp, eyebrows, eyelashes, and beard-related skin disorders medRxiv (Cold Spring Harbor Laboratory) · 2022
    10. Exploring Factors That Influence the Measurement of Patient-Reported Impacts of Alopecia Areata Dermatology and Therapy · 2025
    11. Outcome measure instruments for the assessment and treatment of androgenetic alopecia: A scoping review Clinical and Experimental Dermatology · 2026
    12. Patient-reported outcomes, provider-reported outcomes, and physiologic parameters after gender-affirming hormone treatment in Canada: a systematic review HORMONES · 2025
    13. Patient experience in systemic lupus erythematosus: development of novel patient-reported symptom and patient-reported impact measures Journal of Patient-Reported Outcomes · 2018 · 9 citations
    14. 532P Analyses of patient-reported outcomes (PROs) with mirvetuximab soravtansine (MIRV) versus standard chemotherapy in the randomized phase III FORWARD I study in ovarian cancer (GOG 3011) Annals of Oncology · 2022 · 2 citations
    15. 0475 High-dose UVA-1 therapy improves patient-reported outcomes and clinical scores in patients with sclerosing skin disease Journal of Investigative Dermatology · 2025
    16. Validation of the Cutaneous Lupus Disease Area and Severity Index (CLASI) using physician- and patient-assessed health outcome measures Journal of the American Academy of Dermatology · 2012 · 40 citations
    17. Development of the Alopecia Areata Patient Priority Outcomes Instrument: A Qualitative Study Dermatology and therapy · 2021 · 11 citations
    18. Concordance between clinician-reported and patient-reported outcomes of eyebrow and eyelash hair loss in patients with severe alopecia areata: Results from BRAVE-AA1 and BRAVE-AA2 studies Journal of the American Academy of Dermatology · 2024 · 2 citations
    19. Patient-reported outcome assessment and objective evaluation of chemotherapy-induced alopecia European journal of oncology nursing · 2018 · 8 citations
    20. Patient-Reported Outcomes From Phase III Neoadjuvant Systemic Trial Comparing Neoadjuvant Chemotherapy With Neoadjuvant Endocrine Therapy in Pre-Menopausal Patients With Estrogen Receptor-Positive and HER2-Negative, Lymph Node-Positive Breast Cancer Frontiers in Oncology · 2021 · 1 citations
    21. Evaluating the accuracy of patient-reported hair outcomes versus trichometric measurements in PRP therapy Archives of Dermatological Research · 2025
    22. Patient prioritisation of items to develop the Patient‐Reported Impact of Dermatological Diseases measure: A global Delphi study Journal of the European Academy of Dermatology and Venereology · 2024 · 2 citations
    23. The Spectrum of Health Domains Important to Lupus Patients Early Development of a Disease Activity Patient Reported Outcome. PubMed · 2019 · 2 citations
    24. A Systematic Review of 207 Studies Describing Validation Aspects of the Dermatology Life Quality Index Acta Dermato Venereologica · 2024 · 8 citations
    25. Content validity of five single‐item instruments in adolescents with alopecia areata British Journal of Dermatology · 2022 · 1 citations
    26. Combination therapy with injectable platelet-rich fibrin and microneedling for male androgenetic alopecia: an evaluation of current practice Journal of Aesthetic Nursing · 2021
    27. Validation of the Alopecia Areata Patient Priority Outcomes (AAPPO) Questionnaire in Adults and Adolescents with Alopecia Areata Dermatology and Therapy · 2021 · 22 citations
    28. PCR108 QUALITATIVE AND PSYCHOMETRIC EVALUATION OF THE CLINRO MEASURE FOR EYEBROW HAIR LOSS AND CLINRO MEASURE FOR EYELASH HAIR LOSS IN ADULTS AND ADOLESCENTS WITH SEVERE ALOPECIA AREATA Value in Health · 2026
    29. 42752 Evaluation of Eyebrow and Eyelash Regrowth and Patient Satisfaction in the Phase 3 THRIVE-AA1 Trial with CTP-543 (Deuruxolitinib) in Adult Patients with Moderate to Severe Alopecia Areata Journal of the American Academy of Dermatology · 2023
    30. A new self‐reported measure of disease severity of scalp hair loss in alopecia areata British Journal of Dermatology · 2020 · 1 citations