When Can I Stop My Steroids? The Patient Perspective on Glucocorticoid Usage in Adult Inflammatory Myopathy

June 2020 in “ Annals of the Rheumatic Diseases ”

Jesús Loarce-Martos, James B Lilleker, Eve Alder, Jo Goode, Hector Chinoy

glucocorticoid prednisolone idiopathic inflammatory myopathy inflammatory myopathy adverse effects sleep disturbances mood swings weight gain GC steroids

TLDR Patients need better information about the risks of long-term steroid use.

The study surveyed 122 patients with idiopathic inflammatory myopathy (IIM) to understand their perspectives on glucocorticoid (GC) treatment. The majority of respondents were female (79%) with a mean age of 50 years. The median daily dose of prednisolone was 15 mg, and the median treatment duration was 5.3 years. Adverse effects (AEs) were common, with sleep disturbances (93%), mood swings (86%), and weight gain (86%) being the most frequently reported. Female patients reported more severe AEs compared to males, and only 54% of respondents felt adequately informed about the potential risks of GC treatment. The study highlighted the need for better communication regarding the risks associated with long-term GC use.

View this study on ard.bmj.com →

Discuss this study in the Community →

Similar Research

5 / 1000+ results

research Update on the Dermatologic Use of Systemic Glucocorticosteroids

40 citations, July 2007 in “Dermatologic Therapy”

Systemic glucocorticosteroids are a primary treatment for various skin conditions but require careful management due to potential side effects and relapses.

research The British Society for Rheumatology Guideline for the Management of Systemic Lupus Erythematosus in Adults

213 citations, June 2017 in “Rheumatology”

The guidelines suggest a detailed approach to diagnosing and treating lupus, with a focus on regular check-ups, personalized medicine, and a range of drug options for different cases.

research Cannabinoid Compounds as a Pharmacotherapeutic Option for the Treatment of Non-Cancer Skin Diseases

3 citations, December 2022 in “Cells”

Cannabinoids like CBD and THC may help treat non-cancer skin diseases, but more research is needed.

research Interstitial Pneumonia with Autoimmune Features: Challenges and Controversies

7 citations, December 2021 in “European Respiratory Review”

The document concludes that diagnosing and treating Interstitial Pneumonia with Autoimmune Features (IPAF) is challenging, needs a multidisciplinary approach, and further research for better diagnostic criteria and treatments. It also emphasizes regular checks for Connective Tissue Disease symptoms in all patients with Interstitial Lung Disease.

research General Dermatology: Comprehensive Overview of Dermatological Conditions

January 2017 in “Springer eBooks”

The document explains various skin conditions and their treatments.

When Can I Stop My Steroids? The Patient Perspective on Glucocorticoid Usage in Adult Inflammatory Myopathy

Related Community Posts Join

community New and Interesting HairLoss Studies/Papers/Reviews

community We Need A Solution For The Inflammatory Response related To AGA

community Pyrilutamide is working but not strong enough, how long should i wait for noticeable results?

community AA and Hirsutism but T levels are normal

community No luck with meds, Check your Cortisol.

community NootBro Recommendations… How Do We Feel