Developing Patient-Reported Outcome Measure for Hair and Skin Disorders

    Yu-Feng Chang, Lara Drake, Sophia Reyes-Hadsall, John S. Barbieri, Arash Mostaghimi
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    TLDR The goal is to create a tool for patients to report their experiences with various hair and scalp disorders.
    This phase I study aims to develop a patient-reported outcome measure (PROM) for various hair disorders, including alopecia areata, androgenic alopecia, lichen planopilaris, central centrifugal cicatricial alopecia, and sebopsoriasis. The study will use thematic analysis of qualitative semi-structured interviews with patients aged 18 years and older. The interviews will focus on the patients' physical appearance, disease journey, treatment goals, physical symptoms, and psychosocial impact. The goal is to create a PROM that can be applied to a multitude of hair-related disorders. The study will continue until thematic saturation is reached, ensuring patient diversity in gender, race and ethnicity, age, and hair-related disorder. The study has been approved by the Brigham and Women’s Hospital Institutional Review Board.
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      If You Have DUPA, PLEASE READ THIS: Everyone Should Be Scalp Biopsied

      community If You Have DUPA, PLEASE READ THIS: Everyone Should Be Scalp Biopsied

      in Research  821 upvotes 5 months ago
      Scalp biopsies are crucial for diagnosing hair loss conditions like Diffuse Unpatterned Alopecia (DUPA) and retrograde hair loss, as treatments like finasteride and dutasteride may not be effective if other conditions are present. Combining PPAR-GAMMA agonists with retinoids could improve treatments for conditions like Lichen Planopilaris.

      community C’est terrible - at my wits end

      in Female  447 upvotes 1 year ago
      A 29-year-old woman is experiencing gradual hair thinning since age 15, suspects Androgenic Alopecia, and has tried 5% minoxidil with little success. She has purchased various hair loss treatments including minoxidil, dutasteride, finasteride, and spironolactone, but is cautious about starting them due to potential interactions with her ADHD medication.

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