Creating a Survey Instrument for Self-Assessed Menstrual Cycle Characteristics and Androgen Excess

    March 2020
    Shruthi Mahalingaiah, Carol Cosenza, J. Jojo Cheng, Erika Rodriguez, Ann Aschengrau
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    TLDR In 2020, a new online survey was made to help identify Polycystic ovary syndrome (PCOS) in women, but it needs some improvements for better understanding and accuracy.
    In 2020, researchers developed and evaluated an online survey tool for identifying Polycystic ovary syndrome (PCOS), the most common reproductive disorder in women. The survey incorporated clinically derived reproductive health questions and a novel pictorial tool for androgen excess. Cognitive testing was used to assess question comprehension and usability. Issues identified included simplifying the PCOS definition and questions on bleeding duration, as well as recall and answer formation problems related to beverage consumption and questions using symbols. The evaluation of this survey instrument could help accurately ascertain the prevalence of PCOS in general population settings.
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