Proceedings of the Inaugural Pediatric Dermatology Research Alliance Conference

    November 2014 in “ ˜The œjournal of investigative dermatology/Journal of investigative dermatology ”
    Dawn H. Siegel, Keith Choate, Beth A. Drolet, Ilona J. Frieden, Sheila Rittenberg, Joyce Teng, Wynnis L. Tom, Mary L. Williams, Lawrence F. Eichenfield, Amy S. Paller
    TLDR The conference concluded with plans for joint research into children's skin conditions and emphasized the importance of collaboration and patient-focused research.
    The inaugural Pediatric Dermatology Research Alliance (PeDRA) Conference, held on November 1, 2014, focused on advancing research in pediatric dermatology by fostering collaboration among clinicians, scientists, and advocacy groups. Key discussions included the need for standardized data collection, development of new treatment protocols, and the significance of multi-center studies. The conference emphasized patient-centered outcomes and sustainable research networks to improve understanding, treatment, and prevention of pediatric skin diseases, with initial projects targeting inflammatory skin diseases, birthmarks, genetic disorders like Epidermolysis Bullosa, and disorders of cornification. The event highlighted the importance of longitudinal data, evidence-based neonatal care guidelines, and centralized data systems, supported by various organizations and NIH funding.
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