Creating Value for Psoriasis Patients: Development of a Patient-Driven Outcome Set for Clinical Practice

    October 2021 in “ Journal of Investigative Dermatology ”
    Niels Hilhorst, Elfie Deprez, Nanny van Geel, Deepak Balak, Isabelle Hoorens, Jo Lambert
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    TLDR Patients with psoriasis ranked symptom control and treatment efficacy as most important for their care.
    The study aimed to develop a patient-driven outcome set for managing psoriasis, a chronic inflammatory skin disease that significantly impacts patients' quality of life. A systematic review was first conducted, resulting in 23 patient-relevant outcomes. These outcomes were then presented to 10 patients to verify their relevance, and subsequently ranked by 120 patients attending a psoriasis clinic. The most important outcomes identified by patients were symptom control, treatment efficacy, confidence in care, and control of disease, while the least important were comorbidity control, productivity, and cost of care. Two outcomes were excluded as they were deemed inappropriate. The study concluded with the creation of the first patient-driven outcome set for psoriasis management, which may serve as a benchmarking tool to appraise and improve care across centers and among individual healthcare providers.
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