Using Artificial Intelligence to Analyze Publicly Available Social Media Posts to Understand Patient Perspectives Toward Specific Treatments of Alopecia Areata

    September 2022 in “ JAAD international
    Jeremy Jueng, Vishnu Bhupalam, Ashley Su, Léonie Dupuis, Caridad Infante, Shazmeen Shaikh, Robert P. Dellavalle, Ian M. Brooks, Vernon Burton, Jon Solomon
    Image of study
    TLDR Patients generally feel positive about alopecia areata treatments, but emotions vary by treatment type.
    The study analyzed 102,444 social media posts to understand patient perspectives on alopecia areata (AA) treatments using artificial intelligence. Treatments included minoxidil, dexamethasone, prednisone, triamcinolone, biotin, essential oils, JAK inhibitors, and wigs/hairpieces. Most treatments, except dexamethasone, had over 75% positive Patient Global Impression of Change (PGIC) scores, indicating perceived improvement. However, many posts with positive PGIC scores also had negative underlying emotions, especially for minoxidil, JAK inhibitors, and prednisone. The study highlights the importance of considering patient-reported outcomes and emotional responses in treatment plans to improve patient satisfaction and care. Limitations include potential biases from self-identified patients and the variability of "essential oils" ingredients.
    Discuss this study in the Community →

    Research cited in this study

    2 / 2 results

    Related Community Posts Join

    6 / 1000+ results

      community 6th Month Checkpoint! There is progress (I think?)

      in Progress Pictures  29 upvotes 8 months ago
      The conversation discusses a user's six-month progress in treating hereditary hair loss using a regimen that includes minoxidil, finasteride, dutasteride, and other medications. Opinions vary on the effectiveness and logic of the treatment, with some users suggesting additional methods like microneedling.

      community New and Interesting HairLoss Studies/Papers/Reviews

      in Treatment  40 upvotes 5 years ago
      Hair loss treatments discussed include Dutasteride with Ketoconazole, tissue engineering strategies, and androgenetic alopecia therapies. Massage doubles follicular retention, improving treatment effectiveness.

      community How much Minoxidil goes systemic?

      in Minoxidil  68 upvotes 2 days ago
      The conversation is about the systemic absorption of Minoxidil and the potential switch from topical to oral Minoxidil due to its effectiveness. The user considers oral Minoxidil after experiencing no side effects from a year of using 15% topical Minoxidil.

      community Flakey scalp due to minoxidil?

      in Minoxidil  7 upvotes 1 week ago
      Minoxidil can cause scalp flaking and dryness, often due to its alcohol content. Switching to foam minoxidil or using antifungal shampoos like Ketoconazole may help reduce these side effects.

      community Minoxidil experiment on single hair follicle

      in Minoxidil  1628 upvotes 1 week ago
      Minoxidil was applied to a single miniaturized hair follicle over four months, resulting in less miniaturization but not yet terminal growth. The user used a 5% minoxidil solution, specifically the Regaine brand, and observed changes using a handheld WiFi microscope.

    Related Research

    1 / 1 results