research Evaluating the Disease-Related Experiences of TikTok Users With Lupus Erythematosus: Qualitative and Content Analysis
Lupus patients on TikTok feel isolated, face medical gaslighting, and prefer non-drug treatments.
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research Evaluating the Disease-Related Experiences of TikTok Users With Lupus Erythematosus: Qualitative and Content Analysis
TikTok videos show that people with Lupus often discuss symptoms and their significant impact on mental health, face diagnostic delays, have mixed views on treatments, and feel isolated despite support.
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5 / 39 resultscommunity I don’t get it - I keep shedding hair even 2 years into fin
OP is experiencing ongoing hair shedding despite two years on finasteride, with some initial improvement but no long-term success. Users suggest seasonal shedding, checking for vitamin deficiencies, considering minoxidil, and possibly switching to dutasteride.
community Is CosmeRna a scam? Terminal hair count vs Total hair count.
The conclusion of the conversation is that CosmeRna may not be an effective treatment for hair loss compared to topical minoxidil 2%. It is suggested to wait for more reviews before purchasing it.
community Anyone else’s loved ones just blatantly gaslight you over your hair ?
User discusses resentment towards people who dismissed their hair loss concerns and continued to do so even after a specialist confirmed it. Others share similar experiences and discuss the impact of hair loss on self-esteem and societal perceptions.
community I’ve been on oral finasteride/Proscar for 15 years. (AMA)
A user has been on oral Finasteride/Proscar for 15 years and started using topical Minoxidil, RU58841, and Dutasteride, along with microneedling, 2 years ago. They shared progress pictures and discussed their treatment routine.
community Losing hope that doctors will help with my hair loss - Female Hair loss
A 28-year-old woman is struggling with Female Pattern Baldness and has tried various treatments, including Minoxidil and Spironolactone, without success. She feels frustrated with doctors' responses and is considering alternative treatments like light therapy but is losing hope in finding a solution.