Facebook Groups Provide Support and Product Recommendations for Patients Using Scalp Cooling to Prevent Chemotherapy-Induced Alopecia: A Survey Study

September 2024 in “ Journal of the American Academy of Dermatology ”

Lucy Rose, Madison Novice, Abena Minta, Taylor Novice, Brittany Dulmage

scalp cooling cold caps chemotherapy-induced alopecia hair regrowth hair loss camouflaging hair loss vitamins hair loss supplements wigs hair pieces Toppik eyebrow loss eyelash loss

TLDR Facebook groups play a crucial role in supporting and guiding patients on scalp cooling and hair loss during chemotherapy.

A survey study involving 152 women in four Facebook groups dedicated to scalp cooling and cold caps revealed that 88% joined for support, 83% for scalp cooling instructions, 60% for hair regrowth advice, and 49% for hair loss camouflaging tips. Participants frequently tried hair loss vitamins or supplements (20%), wigs or hair pieces (19%), and Toppik (17%). Despite seeking hair regrowth information online, only 5% consulted a dermatologist. For eyebrow and eyelash loss, 72% relied on Facebook groups, compared to 6% consulting oncologists and 4% dermatologists. The study highlights the significant role of Facebook groups in influencing treatment decisions for chemotherapy-induced alopecia, emphasizing the need for dermatologists to be aware of these sources and their clinical validity.

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Quantitative Analysis of the Anatomical Changes in the Scalp and Hair Follicles in Androgenetic Alopecia Using Magnetic Resonance Imaging

research Quantitative Analysis of the Anatomical Changes in the Scalp and Hair Follicles in Androgenetic Alopecia Using Magnetic Resonance Imaging

2 citations, June 2020 in “Skin Research and Technology”

MRI reveals thinner scalps and smaller hair follicles in people with androgenetic alopecia.