Facebook Groups Provide Support and Product Recommendations for Patients Using Scalp Cooling to Prevent Chemotherapy-Induced Alopecia: A Survey Study

September 2024 in “ Journal of the American Academy of Dermatology ”

Lucy Rose, Madison Novice, Abena Minta, Taylor Novice, Brittany Dulmage

scalp cooling cold caps chemotherapy-induced alopecia hair regrowth hair loss camouflaging hair loss vitamins hair loss supplements wigs hair pieces Toppik eyebrow loss eyelash loss

TLDR Facebook groups play a crucial role in supporting and guiding patients on scalp cooling and hair loss during chemotherapy.

A survey study involving 152 women in four Facebook groups dedicated to scalp cooling and cold caps revealed that 88% joined for support, 83% for scalp cooling instructions, 60% for hair regrowth advice, and 49% for hair loss camouflaging tips. Participants frequently tried hair loss vitamins or supplements (20%), wigs or hair pieces (19%), and Toppik (17%). Despite seeking hair regrowth information online, only 5% consulted a dermatologist. For eyebrow and eyelash loss, 72% relied on Facebook groups, compared to 6% consulting oncologists and 4% dermatologists. The study highlights the significant role of Facebook groups in influencing treatment decisions for chemotherapy-induced alopecia, emphasizing the need for dermatologists to be aware of these sources and their clinical validity.

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research Quantitative Analysis of the Anatomical Changes in the Scalp and Hair Follicles in Androgenetic Alopecia Using Magnetic Resonance Imaging

2 citations, June 2020 in “Skin Research and Technology”

MRI reveals thinner scalps and smaller hair follicles in people with androgenetic alopecia.