Satisfaction with Control of Systemic Lupus Erythematosus and Lupus Nephritis: Physician and Patient Perspectives

    October 2016 in “ Patient Preference and Adherence ”
    Neelufar Mozaffarian, S. Lobosco, Peng Lü, Adam Roughley, Gabriela Alperovich
    TLDR Both patients and physicians are often dissatisfied with the control of systemic lupus erythematosus and lupus nephritis.
    The study evaluated satisfaction with the control of systemic lupus erythematosus (SLE) and lupus nephritis (LN) among 374 patients and their physicians, revealing significant discrepancies between the two groups. Physicians reported higher satisfaction rates (78.6% for non-nephritis SLE and 73.8% for LN) compared to patients (75.8% for non-nephritis SLE and 65.5% for LN). Dissatisfaction was linked to symptoms like joint issues, fatigue, and hair loss, and was more common in patients with moderate or severe disease or experiencing flares. The study highlighted the need for better alignment of treatment goals and communication between healthcare providers and patients to improve satisfaction and outcomes.
    Discuss this study in the Community →

    Related Community Posts Join

    6 / 1000+ results

      community Hair Remedies that Don't Work for Anybody Seeking Hair Regrowth

      in Treatment  7 upvotes 4 years ago
      Hair loss treatments discussed include minoxidil, finasteride, and RU58841. Salon products and supplements generally don't work for hair regrowth unless there's a severe nutritional deficiency, while hormonal treatments like estrogen and spironolactone can be effective.
      Diffuse hair loss and scalp biopsies

      community Diffuse hair loss and scalp biopsies

      in Research  692 upvotes 3 months ago
      Scalp biopsies are crucial for diagnosing hair loss conditions like Diffuse Unpatterned Alopecia (DUPA) and retrograde hair loss, as treatments like finasteride and dutasteride may not be effective if other conditions are present. Combining PPAR-GAMMA agonists with retinoids could improve treatments for conditions like Lichen Planopilaris.

      community Seeking Advice: Unusual Hair Loss at 31 Years Old - Any Insights? (M)

      in Chat  15 upvotes 7 months ago
      A 31-year-old man who previously had good results with minoxidil, finasteride, and nizoral for hair loss is now experiencing unusual hair loss and side effects from finasteride. Respondents suggest it might be severe retrograde alopecia and recommend exploring other treatment options due to his inability to tolerate finasteride.

      community Minoxidil Finasteride heart problems

      in Update  97 upvotes 6 months ago
      A user experienced heart problems after taking 1mg finasteride and 2.5mg oral minoxidil and is considering quitting minoxidil. Others discussed their experiences with heart issues and minoxidil, with some suggesting topical minoxidil as a safer alternative.

      community Topical Finasteride: Update

      in Finasteride  64 upvotes 5 years ago
      A user applied a homemade topical finasteride solution daily for 35 days, reducing hair shedding significantly with minimal side effects. They plan to continue for 90 days and will provide further updates.

    Similar Research

    5 / 1000+ results