International Collaboration And Rapid Harmonization Across Dermatologic COVID-19 Registries

    June 2020 in “ Journal of the American Academy of Dermatology ”
    Esther E. Freeman, Devon E. McMahon, George J. Hruza, Alan D. Irvine, Phyllis I. Spuls, Catherine Smith, Satveer K. Mahil, Leslie Castelo‐Soccio, Kelly M. Cordoro, Irene Lara‐Corrales, Haley B. Naik, Raed Alhusayen, John R Ingram, Steven R. Feldman, Esther A. Balogh, Michael D. Kappelman, Dmitri Wall, Nekma Meah, Rodney Sinclair, M. Beylot‐Barry, Matthew E. Fitzgerald, Lars E. French, Henry W. Lim, C.E.M. Griffiths, Carsten Flohr
    TLDR Global collaboration in dermatology improved data sharing and patient care during COVID-19.
    In response to the COVID-19 pandemic, dermatologists worldwide launched 8 registries in March and April 2020 to study the virus's effects on dermatologic conditions. These registries aimed to harmonize data collection and foster international collaboration. A virtual consensus meeting facilitated by the American Academy of Dermatology and the International League of Dermatologic Societies led to the development of a meta-catalog to identify commonalities and harmonize variables across registries. Challenges included potential double data entry and limited global representation, as most registries were based in North America, Europe, and Australia and primarily available in English. Efforts were made to enhance diversity and ensure data representativeness. The success of these registries depended on the quality and diversity of data entered, with the goal of informing patient care during the pandemic.
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